This blog is about our life living with Duchenne, which my son Kelvin has. There will be references to many things: how we found out, the many amazing organizations out there (such as Cure Duchenne, PPMD), fundraising efforts (hence the name of the blog), health care of DMD and life living with Duchenne (DMD-Duchenne Muscular Dystrophy).
Saturday, January 29, 2011
An inspiration
I had always wanted to start a blog for Kelvin, and today, after watching the Cure Duchenne Summit, including Debra and top Duchenne experts, I realized more than ever, that money, yes, money, is the main answer to finding the cure/treatment, so, I'm starting a blog to do 2 things: to update folks about Kelvin and to do my part in advocacy for Duchenne, so we can raise more funds. I mean look at that face at the top, how could I not try!! There are amazing experts in the field, but, they are limited to research and trials, by the money they have, so, I'm on a mission. Well, I'll try more than I have. I'm hate, I mean hate, to ask for money, help, etc. and I don't take well to others doing for me (I'd rather be the person helping), but, Mindy and Debra and the others made me think more about it. I am calling this blog, Cans for Kelvin's Cause: Duchenne, because, in fact, I do collect cans, sell them and put the money in a bank account for what Kelvin "may" need in the future. I also donate a portion to charity, Duchenne Charities that is. Just think if thousands of other people did something simple like us, getting groups involved (like Girl Scouts who go together to collect tabs, etc.). Just think how simple this is to collect cans and what an impact it could have. The money is endless (in states where this is possible). The price of aluminum has increased, so, I'm throwing this out to everyone, for a start. Oh, and with the Super Bowl coming, think of all of those beer cans being thrown away. That is money for our boys, but is also something that we can all do to help the environment as well. For those who find it hard to ask for money, it is easy to ask for cans, as many folks recycle anyway. People at work save for me, so do neighbors, friends, family, my dentist, a local business and others. All you need is a place to keep them, until taking them to sell. I haven't even advertised, just word of mouth. OK, now, I will advertise, as Debra of Cure Duchenne says, all money, no matter how small counts and together, WE CAN CURE DUCHENNE. Please visit a video I posted on YOUTUBE about Duchenne and Kelvin at the following link.
Kelvin and Life with Duchenne
Thanks, Michelle Jones
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